Glycogen Storage Disease – StarchWars

Bloodless Glucometer

Posted on 07. May, 2007 by Jillian.

CNN just wrote an article on a new device that can test blood sugar without pricking the finger! Apparently the device penetrates the skin with near-infared rays eliminating the need for an actual drop of blood. Of the five clinical studies already performed, the new device has tested 85% accurate, whereas a glucometer has an [...]

Continue Reading

Medic- Alert Service Dogs

Posted on 30. Apr, 2007 by Jillian.

Last year when my boys were staying at Shand’s Hospital/ University of Florida, our favorite physician mentioned they had some Malteagles (a maltese/ beagle) that needed a good home. We like dogs, but with (at the time) three small boys with a chronic medical disease, we felt it best to not even consider it. However, [...]

Continue Reading

Emergency Preparation

Posted on 20. Apr, 2007 by Jillian.

What if there was another tragedy like 9/11? Another natural disaster like Hurricaine Katrina? How would we be able to leave without any notice? It’s important for everyone to be prepared for an emergency. It’s especially important for someone with GSD, and it’s extremely important for four boys with GSD. There are many good resources [...]

Continue Reading