Archive for 'Glycogen Storage Disease'

It was a Day.

It was a Day.

Posted on 21. Jan, 2009 by Jillian.

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I had just finished cleaning all the hard wood floors. It was time to go to puppy training. It was also time for 6:00pm cornstarch. The light in their bathroom was out, but Jonny and Dallin were in the bathtub while our C.N.A., Callie, supervised them,  and Franklin decided this would be the optimal time [...]

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Pumpkin Muffins from Kathy Turi

Pumpkin Muffins from Kathy Turi

Posted on 01. Dec, 2008 by Kathy Turi.

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Ingredients for 12 standard muffins
2 cups pastry flour
1/2 cup almond meal
2 teaspoons baking powder
1/8 teaspoon sea salt
1 teaspoon ground cinnamon
1/4 teaspoon allspice
1/8 teaspoon ground cloves
1 teaspoon pure vanilla extract
1 teaspoon maple flavor (Frontier brand)
1/2 cup canola oil
1/2 cup Suzanne’s Specialties Original Brown Rice Syrup
1 cup canned pumpkin (Libby’s 100% Pure Pumpkin)
1/2 cup Eden Rice & [...]

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Flu Season has Officially Begun

Flu Season has Officially Begun

Posted on 19. Nov, 2008 by Jillian.

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Ben caught the flu on Sunday. We quarantined him in our room, and he felt much better the next day, but by Tuesday evening our youngest, Dallin, had a fever. Even after a dose of Tylenol, we could only keep his fever at 100. 5 F. Inevitably we were out of lactate meter test strips, [...]

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Keep Going

Posted on 16. Nov, 2008 by BMW.

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It’s been a while since I have blogged. So much has happened in that last few months. We moved to Meridian, Idaho in June of this year. The school has been wonderful with Mark and he has made fantastic progress. We exchanged Luke for Franklin. Luke seemed to be getting stressed out and Franklin has [...]

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Halloween Dream

Posted on 03. Nov, 2008 by Jillian.

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Ever since the boys were diagnosed, the holidays- especially Halloween- have become a nightmare. Last year we let the older boys trunk or treat a little, and then exchanged their candy for toys. They enjoyed it, but the whole time we were there, I was terrified our little ones would find some candy on the [...]

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Ode to Frau Frosch- and Visual Spacial Teachers Everywhere

Posted on 31. Jul, 2008 by Jillian.

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Hands down, my absolute favorite instructor was my High School German teacher. Instead of making us sit down and copy sentences out of a book, Frau encouraged games, rhymes- creativity in all it’s forms. And, while I’m still amazed at the German I have retained over the years, I must admit that the occasions to [...]

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Training the Sniffer

Posted on 05. Jul, 2008 by BMW.

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I feel bad that I haven’t posted a blog in such a long time. Our family has recently moved and with everything else going on somehow blogging got moved down a little further on the priority list. However, today I was really impressed with how our Glycogen Storage Disease helper pup in training, Luke, worked [...]

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Return of the Rotavirus????

Posted on 21. Apr, 2008 by Jillian.

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Probably not, but it got you to read the blog.  The boys caught a flu that was going around this last week. It started on Monday night when Dallin threw up while drinking his 8pm Cornstarch/ Prosobee bottle. We despise feeding pumps, for obvious reasons, so after checking his blood sugar we gave him a [...]

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Puppy Raisers in High School

Posted on 09. Apr, 2008 by Jillian.

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As many of you know, we are trying to raise a labradoodle puppy to (hopefully) be a hypoglycemic detecting service dog for our boys. We are working with an organization in Idaho called Genesis Service Dogs that raises/ teaches puppies to know the basic skills they will need to become a full fledged service dog [...]

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