Archive for 'Glycogen Storage Disease'

Florida Trip

Posted on 04. Apr, 2008 by Jillian.

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I’ve been a blog slacker since we started preparing for our trip to Dr. Weinstein, but things are starting to get back to normal now, so there goes my excuse.
One of my favorite parts about being in the Clinical Research area of Shand’s Hospital is, obviously Dr. Weinstein. Next in line would have to be [...]

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Dogs and Hypoglycemia

Posted on 12. Mar, 2008 by BMW.

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More and more it seems evident that dogs can be trained and used to help detect hypoglycemia. This article was sent to us by our friends with Genesis Service Dogs who are helping us train Luke. The article is from Diabetes Forecast
http://www.diabetes.org/uedocuments/df-dog-feature-0308.pdf

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How StarchWars was born- or at least the events leading up to it

Posted on 03. Feb, 2008 by Jillian.

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I’m a firm believer that if you’re depressed or feeling pathetic and “why me” you should serve others and you will feel better. That was definitely me last year, but I had never before been in a situation where I felt I really couldn’t help anyone else. I couldn’t even help myself. I was completely [...]

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Swimming in the snow

Posted on 02. Jan, 2008 by Jillian.

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So, I’m not really sure if I wanted to brag about being able to safely take our GSD kids swimming outside while it’s snowing, or if I wanted to brag about our beautiful white Christmas. Either way it isn’t a very becoming attribute, but I couldn’t help myself.
This year we drove up to my parent’s [...]

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Quality of Life with GSD 1A

Posted on 30. Dec, 2007 by BMW.

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My last post was a little dismal with the idea of dealing with sickness during the season on top of GSD, and though it’s no picnic, this year has been a pleasant one(especially when we’ve been able to compare it with the whoppers we’ve had over the past few years).
It came to my wife’s and [...]

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Tis the Season to be Sickly

Posted on 02. Dec, 2007 by BMW.

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This time of year has consistently presented challenges for our family. Having four boys under the age of six tends to expose our family to a plethora of germs and viruses, and with them being more susceptible to getting sick we of course end up fighting off various types of illness.
So far this season we’ve [...]

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My Favorite GSD Friendly-ish Pumpkin Pie

Posted on 22. Nov, 2007 by Jillian.

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This pie turned out so well last year that I actually had non-GSD relatives request it this year.
1 pie crust (Good luck trying to find a sugar free pie crust. I think I just skipped the pie crust all together.)
1 (15 oz.) can pumpkin puree
3/4 cup Splenda
2 Tbsp. cornstarch
1/2 tsp. cinnamon
1 and 1/2 tsp. pumpkin [...]

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Glycogen Storage Disease and the Subtleties of the Brain

Posted on 11. Nov, 2007 by BMW.

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Our family is now beginning to dive deep into the mysterious realm of the brain. Since our older boys were diagnosed with GSD 1A there has been an underlying concern for the well-being and health of their brains. It was apparent that due to multiple exposures to hypoglycemia there had been a delay and possible [...]

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When Life by the Clock “falls back”

Posted on 04. Nov, 2007 by Jillian.

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Daylight savings time kicked in today and we were supposed to get an extra hour of sleep this morning. Ya, right. As if kids like to sleep in on any day other than a school day. We also woke up wondering what on earth to do about switching cornstarch schedules. Somehow it crept up on [...]

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