Archive for 'research'

Bloodless Glucometer

Posted on 07. May, 2007 by Jillian.

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CNN just wrote an article on a new device that can test blood sugar without pricking the finger! Apparently the device penetrates the skin with near-infared rays eliminating the need for an actual drop of blood. Of the five clinical studies already performed, the new device has tested 85% accurate, whereas a glucometer has an [...]

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Medic- Alert Service Dogs

Posted on 30. Apr, 2007 by Jillian.

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Last year when my boys were staying at Shand’s Hospital/ University of Florida, our favorite physician mentioned they had some Malteagles (a maltese/ beagle) that needed a good home. We like dogs, but with (at the time) three small boys with a chronic medical disease, we felt it best to not even consider it. However, [...]

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Emergency Preparation

Posted on 20. Apr, 2007 by Jillian.

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What if there was another tragedy like 9/11? Another natural disaster like Hurricaine Katrina? How would we be able to leave without any notice? It’s important for everyone to be prepared for an emergency. It’s especially important for someone with GSD, and it’s extremely important for four boys with GSD. There are many good resources [...]

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Idaho Parents Unlimited

Posted on 04. Apr, 2007 by Aunt Leslie.

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I came across a remarkable organization today; Idaho Parents Unlimited. We missed their conference this year, but I will make it a point to go next year. Some of the seminars look like just what we need including one related to kids with special diets in school and how to best deal with [...]

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Weird Ice Cream that’s GSD 1A Friendly

Posted on 25. Mar, 2007 by BMW.

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I ran out of ingredients that I normally used for makign our boys “special ice cream”, so I decided to improvise and see what I could come up with. I ended up with an ice cream that had the best texture that I’ve been able to make so far. I was dissappointed with the flavor [...]

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“We finally have a GSD Puppy!”

Posted on 10. Mar, 2007 by BMW.

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Dr. Weinstein was excited to tell us about the new puppy that is confirmed to have Glycogen Storage Disease. The new born malteagle (cross between a maltease and a beagle) pup has been four years in the making (we feel for the mother) and is a welcomed addition to the GSD research team.
With 4 young [...]

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